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Inés Fernández Ulibarri sobre el síndrome Kleefstra
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Category: Diagnostics

Rare Disease Day – why to get involved?
  • Diagnostics
  • Research & Development

Rare Disease Day – why to get involved?

  • Inés Fernández Ulibarri
  • February 28, 2022
  • 0
2021 Kleefstra Syndrome Awareness Day: Reflecting on our milestones
  • Diagnostics
  • Research & Development

2021 Kleefstra Syndrome Awareness Day: Reflecting on our milestones

  • Inés Fernández Ulibarri
  • September 29, 2021
  • 0
How many people are affected by Kleefstra syndrome?
  • Diagnostics
  • Research & Development

How many people are affected by Kleefstra syndrome?

  • Inés Fernández Ulibarri
  • January 11, 2021
  • 0
The Kleefstra Syndrome in the Spanish radio
  • Diagnostics
  • Research & Development
  • Treatment

The Kleefstra Syndrome in the Spanish radio

  • Inés Fernández Ulibarri
  • September 17, 2020
  • 1
Today is a special day
  • Diagnostics
  • Research & Development
  • Treatment

Today is a special day

  • Inés Fernández Ulibarri
  • September 17, 2020
  • 0
https://youtu.be/IdbEhEyRXig

Together for a cure

I am a doctor in biology and the mother of a little girl with Kleefstra syndrome. My dream, like that of many parents, is to find a cure for this syndrome. There is still a long way to go, but only if families, doctors and researchers work together , we will make progress in improving medical care and developing specific treatment. I have created this new platform with the aim of building bridges and strengthening collaborations between these three communities.

Temas

  • Diagnostics
  • Research & Development
  • Treatment

Bienvenido

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Temas

  • Diagnostics
  • Research & Development
  • Treatment
https://www.youtube.com/watch?v=_0jetkSP128

Cream Magazine by Themebeez

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