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2021
July

Month: July 2021

Treatment

The development of a clinical guide for Kleefstra syndrome has been kicked off

Inés Fernández Ulibarri
July 16, 2021
0

Together for a cure

I am a doctor in biology and the mother of a little girl with Kleefstra syndrome. My dream, like that of many parents, is to find a cure for this syndrome. There is still a long way to go, but only if families, doctors and researchers work together , we will make progress in improving medical care and developing specific treatment. I have created this new platform with the aim of building bridges and strengthening collaborations between these three communities.

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