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Inés Fernández Ulibarri sobre el síndrome Kleefstra
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Day: 17 September 2022

Welcome to the Spanish Kleefstra  Association
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Welcome to the Spanish Kleefstra Association

  • Inés Fernández Ulibarri
  • September 17, 2022
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https://youtu.be/IdbEhEyRXig

Together for a cure

I am a doctor in biology and the mother of a little girl with Kleefstra syndrome. My dream, like that of many parents, is to find a cure for this syndrome. There is still a long way to go, but only if families, doctors and researchers work together , we will make progress in improving medical care and developing specific treatment. I have created this new platform with the aim of building bridges and strengthening collaborations between these three communities.

Temas

  • Diagnostics
  • Research & Development
  • Treatment

Bienvenido

Kleefstra es un syndrome BlaKleefstra es un syndrome BlaKleefstra es un syndrome BlaKleefstra es un syndrome Bla Kleefstra es un syndrome BlaKleefstra es un syndrome BlaKleefstra es un syndrome Bla.

Temas

  • Diagnostics
  • Research & Development
  • Treatment
https://www.youtube.com/watch?v=_0jetkSP128

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