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2022
February

Month: February 2022

Rare Disease Day – why to get involved?

Diagnostics
Research & Development

Rare Disease Day – why to get involved?

Inés Fernández Ulibarri
February 28, 2022
0

Together for a cure

I am a doctor in biology and the mother of a little girl with Kleefstra syndrome. My dream, like that of many parents, is to find a cure for this syndrome. There is still a long way to go, but only if families, doctors and researchers work together , we will make progress in improving medical care and developing specific treatment. I have created this new platform with the aim of building bridges and strengthening collaborations between these three communities.

Temas

Diagnostics
Research & Development
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